Best Practices for Working Creatively with Personal Data


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———. 2019b. The Waiting Room Film and VR: BBC Click Interview. Online video.

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———. 2019b. “Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (2018) Chapter 2: Scope and Approach.” Last modified September 23, 2019.

———. 2019c. “Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (2018) Chapter 9: Research Involving the First Nations, Inuit and Métis Peoples of Canada, Article 2.4 and Article 9.22.” Last modified September 23, 2019.

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Cox, Susan. 2021. “Emerging Ethical Challenges in Innovative Visual Methodologies.” In Proceedings of the Know Thyself as Virtual Reality E-Symposium, 41–50. Edmonton, AB: AI4Society.

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Dal Bo, Dana. 2021 ArtAIfacts: Co-Creation with Non-Human Systems, 3rd June 2021, LASERAlberta, University of Alberta, Edmonton, Canada. 

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———. n.d. “European Data Protection Supervisor: Glossary.”

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Hassan, Fahim. 2021. “Navigating Data Dilemmas Workshop, AI and Facial Recognition Technology: The Path Forward.” In Proceedings of the Know Thyself as Virtual Reality E-Symposium, 50–55. Edmonton, AB: AI4Society.

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Helgesson, G., J. Ludvigsson, and U. Gustafsson Stolt. 2005. “How to Handle Informed Consent in Longitudinal Studies When Participants Have a Limited Understanding of the Study.” Journal of Medical Ethics 31 (11): 670–73.

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———. n.d. “What Is Valid Consent?” Accessed March 19, 2022.

Ingram, Katrina. 2021. “Navigating Data Dilemmas Workshop, The Circle of Healthcare Data.” In Proceedings of the Know Thyself as Virtual Reality E-Symposium, 55–59. Edmonton, AB: AI4Society.

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Joshi, Heather, and Emla Fitzsimons. 2016. “The Millennium Cohort Study: The Making of a Multi-purpose Resource for Social Science and Policy.” Longitudinal and Life Course Studies 7 (4): 409–30.

Karavadra, Uma. 2019. “Jake Elwes.” Contemporary Art Society, November 28, 2019.

Kasket, Elaine. 2020. All the Ghosts in the Machine: The Digital Afterlife of Your Personal Data. London: Robinson.

Kugler, Matthew. 2019. “From Identification to Identity Theft: Public Perceptions of Biometric Privacy Harms.” U.C. Irvine Law Review, vol. 10, 107-152. 

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Lewis, Sarah. 2019. “What Is Generative Adversarial Network (GAN)? – Definition from WhatIs.Com.” SearchEnterpriseAI.

Lloyd, William K., Jayne Morriss, Birthe Macdonald, Karin Joanknecht, Julie Nihouarn, and Carien M. Van Reekum. 2021. “Emotion Regulation in the Ageing Brain, University of Reading, BBSRC.” OpenNeuro.

Lucivero, Federica. 2020. “Big Data, Big Waste? A Reflection on the Environmental Sustainability of Big Data Initiatives.” Science and Engineering Ethics 26 (2): 1009–30.

Madhusoodanan, Jyoti. 2021 “These apps say they can detect cancer. But are they only for white people?” The Guardian, 28 August 2021.

Mapplebeck, Victoria. 2019. The Waiting Room VR

Mattern, Shannon. 2018. “Databodies in Codespace.” Places. April 2018.

McCarthy, Lauren. 2017. LAUREN: The Human Intelligent Smart Home.

———. 2018. “Feeling at Home: Between Human and AI.” Immerse. January 8, 2018.

McNutt, Marcia K., Monica Bradford, Jeffrey M. Drazen, Brooks Hanson, Bob Howard, Kathleen Hall Jamieson, Véronique Kiermer, et al. 2018. “Transparency in Authors’ Contributions and Responsibilities to Promote Integrity in Scientific Publication.” Proceedings of the National Academy of Sciences 115 (11): 2557–60.

Mirsky, Yisroel. 2019. “Deepfakes: Medical Image Tamper Detection Data Set.” University California Irvine Machine Learning Repository.

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Moss, Ceci. 2009, “ (2004) – Miltos Manetas and Aaron Russ Clinger”,

Mullaney, Thomas S, Benjamin Peters, Mar Hicks, and Kavita Philip. 2021. Your Computer Is on Fire. Cambridge, MA: MIT Press.

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Mundy, Owen, and Joelle Dietrick. 2020. “Tally Saves the Internet.” Visual Art & Design Forum, 2020, hosted by the Department of Art & Design at University of Alberta, November 19, 2020.

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Noury, Cynthia, Marianne Cloutier, and Marie-Christine Roy. 2018. Toolbox in RCRC: Synthesis of Responsible Conduct in Research-Creation Issues and Proposal of Reflective Tools. November 2018.

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———. 2018a. “Guidelines for Obtaining Meaningful Consent.” May 24, 2018.

———. 2018b. “PIPEDA in Brief.” January 9, 2018.

Ogbogu, Ubaka. 2021. “Do You ‘Own’ Your Health Data?” In Proceedings of the Know Thyself as Virtual Reality Ethics e-Symposium, 29–40. Edmonton, AB: AI4Society.

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———. 2016b. On Missing Data Sets.

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